There are at least 21 epilepsy deaths a week, our studies show that many of these deaths could be avoided.
SUDEP Action is dedicated to funding the prevention of epilepsy deaths including Sudden Unexpected Death in Epilepsy (SUDEP) and supporting families who are suddenly bereaved. Our death prevention work includes research, awareness, and education. Our support includes advice on inquest processes, a free support line to help those living with grief, and enablement of those bereaved to take action to help prevent future deaths.
You can read the annual reports below to see how money has been spent this year and in previous years.