General
Amber’s death highlights need for more SUDEP discussions
Amber Walker died of SUDEP in 2023. A Prevention of Future Deaths Report says more must be done to highlight SUDEP risks in patient discussions.
SUDEP Action
News
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FundraisingRemembering Ryan with Goodie Fest
Abigail Birtles, Charlotte Templeman and Kieron Parry organise GoodieFest in memory of Ryan Goodman.
CampaignsMotion in Scottish Parliament to acknowledge SUDEP Action Day
MSP Monica Lennon lodges motion to recognise SUDEP Action Day
CampaignsTen barriers SUDEP Action has broken down since 1995
Jane Hanna OBE identifies the top 10 barriers that SUDEP Action has fought since it was founded in 1995.
CampaignsShoelaces: A personal story of loss and perseverance
Roy Grimes has written a book of his experiences called Shoelaces following the death of his brother Nathan.
GeneralOmbudsman says health board failed vulnerable epilepsy patients
A complaint brought by seven families – who had been using a specialist service that stopped abruptly in June 2021 – has been upheld by the Ombudsman.
Fundraising“Never give up!” 3 x 3 peaks climbed in memory of Martin
Group climbs to the summit of all nine mountains in memory of Martin Morgan.
GeneralOur Coffee Clubs: A safe space for bereaved families
You’re welcome at the Coffee Club by our SUDEP Action team and volunteers.
CampaignsArtist Rachel brings colour to our 30 for 30 challenge
Trustee Rachel Shah is taking on the 30 for 30 challenge
Campaigns30 for 30 the Interim CEO’s perspective
Dan Freshwater explains why he is taking part in a 30 for 30 challenge
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
