SUDEP Action

Making every epilepsy death count
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Sunday Times letter raises alarm on untimely epilepsy deaths



Neurology deaths are increasing, but deaths from other conditions have fallen.
At least 21 people with epilepsy die each week; yet we know things can be done to stop this.
This letter speaks on behalf of the families left behind.


We need YOUR support for action now!

Following the shocking findings in the recent Public Health England report about increasing neurology deaths and the tragic number of young, premature deaths due to epilepsy, SUDEP Action has joined forces with the Association of British Neurologists, and the British Chapter of the International League Against Epilepsy to write a letter to the national broadsheet newspaper, The Sunday Times. The letter contains a number of key signatures who support the call to action from Government - to prevent these untimely deaths.

SUDEP Action are calling for a meeting with the Secretary of State for Health and Social Care (Jeremy Hunt MP) to meet with us. 

But we need your support too!

Whether you are a supportive organisation, or individual supporter - your voices are needed to help us make a difference. See our letter below and pledge your support:

Letter to Sunday Times

The following organisations are supporting our call for action - do you?
Sign up below, and find out how else you can get involved in the campaign here

SUDEP Action logo ABN
      MF logo       

Using the form below, please add your name and details - we will only use your registration for the purposes of this campaign. 

If you tick 'yes' below, we will follow up with an email in due course asking for you to confirm your preferences for SUDEP Action to contact you further about this campaign. Your personal information (name and email) will be kept anonymous and will not be shared unless you have expressed your preferences otherwise when we contact you. 

*Ticking 'no' below will still mean you are counted in this campaign, however, your personal information will be kept anonymous and we will not be able to update you on this campaign.

Thank you on behalf of the bereaved community