SUDEP Action

Making every epilepsy death count
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Prevent21 gain new corporate supporter to help save lives in for 2020

                          MWB visit

[Pictured L to R: Shelly Johnson (SUDEP Action Communications Manager), Nicky Doe (MWB Marketing Manager), Jane Hanna (SUDEP Action CEO), Paul Warren (MWB Managing Director), Sammy Ashby (SUDEP Action Deputy CEO)]

SUDEP Action are delighted to welcome website design agency, Making Websites Better as a new corporate supporter for 2020. The agency’s Managing Director; Paul Warren will also become a volunteer for the charity to help to raise awareness of SUDEP Action’s Prevent21 Campaign.

Paul’s younger sister sadly passed away in her sleep in October 2019 and the grieving process has been extremely painful for his family. The shock of a sudden and unexpected death, followed by the coroners not being able to give a medical cause of death, has been inherently distressing, but Paul is determined to use his younger sister’s memory as a way of preventing other families from experiencing the same heartbreak.

Making Websites Better are a bespoke website design agency specialising in the design, development and delivery of uniquely crafted websites for clients across a variety of sectors. 

The agency have agreed to donate 21 hours of our time per month to help to raise awareness via brand, web and marketing activity for the Prevent21 campaign. This has a commercial value of approximately £21,000 per year and we’ll also be fundraising to help support the charity too.

I lost my sister to SUDEP in her 30’s and our new investor Paul Taylor also lost his friend to the same unexpected way in his 20’s. So, whilst we’re a small team, we’ve been touched by this and are now passionate to do what we can to reduce that scary number of 21 deaths due to epilepsy per week in the UK.” - Paul Warren

We are thrilled that Paul and Making Websites Better is working with us as a corporate partner for our Prevent21 campaign. Paul approached us after the death of his sister and is passionate about our cause. This partnership is a great boost at this time; we helped over 13,000 people last year and we know we can help many more. We are delighted that that by working with Making Websites Better we can build our brand and marketing to reach wider audiences in need, or who wish to help stop unnecessary epilepsy deaths.”   - Jane Hanna OBE, CEO SUDEP Action


More about Prevent21

The Prevent21 campaign is dedicated to taking necessary action to reduce risk from seizures and from Sudden Unexpected Death in Epilepsy (SUDEP). Epilepsy claims the lives of at least 21 people each week in the UK, mostly in the young and healthy, leaving families broken and searching for answers.

More information about the campaign and how to be involved, can be found at  
If you would like more information about how to reduce epilepsy risks, visit our epilepsy and risk pages or contact us on [email protected] 
If you have been bereaved by epilepsy and would like to talk, contact our free, dedicated and confidential support service on [email protected] or 01235 772852