News
3rd Mar 2022
19th Nov 2021
Findings from SUDEP Action’s COVID-19 and epilepsy survey
12th Nov 2021
3rd Nov 2021
15th Apr 2021
21st Jul 2020
26th Jul 2018
28th Apr 2017
16th Mar 2017
28th Feb 2017
7th Feb 2017
11th Jan 2017
Gresham Lecture explores effect of premature deaths from Sudden Unexpected Death in Epilepsy (SUDEP)
13th Dec 2016
9th Dec 2016
“There is nothing so tragic as a life needlessly lost.”
20th Oct 2016
20th Oct 2016
19th Sep 2016
22nd Jul 2016
28th Jun 2016
28th Jun 2016
20th Jun 2016
13th May 2016
9th May 2016
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10th Dec 2015
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23rd Nov 2015
9th Nov 2015
While bereavement is seen as a natural part of life, 10% to 20% of people may require further help especially...
2nd Oct 2015
18th Sep 2015
1st Sep 2015
1st Sep 2015
Scientists have made a breakthrough in understanding premature death in people with epilepsy.
7th Aug 2015
13th Jul 2015
20th May 2015
1st May 2015
25th Mar 2015
25th Mar 2015
4th Mar 2015
SUDEP Action welcomes commitment to tackle avoidable deaths made in House of Commons epilepsy debate
4th Mar 2015
4th Mar 2015
4th Mar 2015
4th Mar 2015
11th Dec 2014
8th Dec 2014
28th Nov 2014
28th Oct 2014
23rd Oct 2014
Seymour researcher gets unprecedented access to find out what causes sudden deaths.
22nd Oct 2014
MP Ed Vaizey has supported the launch of SUDEP Awareness Day-23 October by SUDEP Action. The day is dedicated...
2nd Sep 2014
Delegates attending the10th Asian & Oceanian Epilepsy Congress (AOEC), which took place in Singapore this...
12th Aug 2014
7th Aug 2014
Newly appointed SUDEP Action International Research Officer Dr Rosemary Panelli represented the charity at...
5th Aug 2014
More than 16,000 copies of a book that brings together global expertise on SUDEP will have been distributed...
11th Jun 2014
1st May 2014
27th Mar 2014
28th Feb 2014
A community study in Cornwall UK of Sudden Unexpected Death in Epilepsy (SUDEP) in a 9 year population sample
29th Nov 2013
23rd Sep 2013
8th Jul 2013
Source: Global News - By Julia Wong
22nd May 2013
A study in Cornwall funded by SUDEP Action through Kt's Fund is making waves in Cornwall and across the...
22nd May 2013
Nearly 200 people have already registered with The Epilepsy Deaths Register since the end of March, 2013.
22nd May 2013
Pudsey Member of Parliament Stuart Andrew has applauded 13 year old Jack Megson’s epilepsy awareness raising...
12th Mar 2013
East Enders on Tuesday 12th March made history in gently breaking awareness of sudden death and epilepsy.
5th Feb 2013
A study in Cornwall could help reduce the risk of Sudden Unexpected Death in Epilepsy (SUDEP). Researchers...
5th Feb 2013
A study is underway to look at what disrupts heart and lung activity during seizures that can prove lethal...
5th Feb 2013
Raising awareness of Sudden Unexpected Death in Epilepsy among coroners and pathologists has led to better...
28th Dec 2012
Schoolboy Jack Megson has attracted the attention of ex-health minister Paul Burstow after he called for the...
27th Dec 2012
A mother whose son died following two massive seizures a year ago was nominated for “fundraiser of the year”...
30th Nov 2012
Doctors and nurses working with epilepsy heard about the many ways EB helps families bereaved by SUDEP.
30th Nov 2012
Epilepsy Bereaved staged its biggest conference ever, thanks to the support of 100 researchers, families,...
29th Nov 2012
UK charity Epilepsy Bereaved has been hailed as an international leader in the global campaign to eliminate...
29th Nov 2012
More than 15,000 copies of a book that brings together global expertise on SUDEP will have been distributed...
1st Nov 2012
A community angered by the theft of an EB collection tin in memory of a 22-year-old teaching assistant have...
1st Oct 2012
Epilepsy Bereaved has welcomed the UK’s first national audit of epilepsy care for children and young people.
4th Apr 2012
Supporters left EB’s annual conference fired up to do everything they can to reach out to people with...
16th Jan 2012
Epilepsy Society and Epilepsy Bereaved have today announced a strategic alliance between the two charities.
10th Nov 2011
Birmingham, Selly Oak MP Stephen McCabe used an adjournment debate in the House of Commons to highlight the...
1st Nov 2011
An important study published in the electronic version of Lancet Neurology, concludes that treatment with...
8th Aug 2011
The Scottish Fatal Accident Inquiry determination that SUDEP should be discussed unless it would cause...
7th Jul 2011
The heartbreaking story of how a healthy 10-year-old boy died in his sleep from SUDEP was used by a...
5th Jun 2011
The Epilepsy World Congress 2011 held in Rome attracted some 4,000 delegates and the topic of the...
5th May 2011
The Royal College of Paediatrics and Child Health is investigating serious morbidity and mortality in...