SUDEP Action

Making every epilepsy death count
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News

10th Jul 2024

26th Mar 2024

Thanks to Ellie for writing this blog specifically for SUDEP Action for Purple Day 2024

28th Jul 2017

11th Jan 2017

Gresham Lecture explores effect of premature deaths from Sudden Unexpected Death in Epilepsy (SUDEP)

9th Nov 2015

While bereavement is seen as a natural part of life, 10% to 20% of people may require further help especially...

1st Sep 2015

Scientists have made a breakthrough in understanding premature death in people with epilepsy.

23rd Oct 2014

Seymour researcher gets unprecedented access to find out what causes sudden deaths.

22nd Oct 2014

MP Ed Vaizey has supported the launch of SUDEP Awareness Day-23 October by SUDEP Action. The day is dedicated...

2nd Sep 2014

Delegates attending the10th Asian & Oceanian Epilepsy Congress (AOEC), which took place in Singapore this...

7th Aug 2014

Newly appointed SUDEP Action International Research Officer Dr Rosemary Panelli represented the charity at...

5th Aug 2014

More than 16,000 copies of a book that brings together global expertise on SUDEP will have been distributed...

28th Feb 2014

A community study in Cornwall UK of Sudden Unexpected Death in Epilepsy (SUDEP) in a 9 year population sample

29th Nov 2013

8th Jul 2013

Source: Global News - By Julia Wong

22nd May 2013

A study in Cornwall funded by SUDEP Action through Kt's Fund is making waves in Cornwall and across the...

22nd May 2013

Nearly 200 people have already registered with The Epilepsy Deaths Register since the end of March, 2013.

22nd May 2013

Pudsey Member of Parliament Stuart Andrew has applauded 13 year old Jack Megson’s epilepsy awareness raising...

12th Mar 2013

East Enders on Tuesday 12th March made history in gently breaking awareness of sudden death and epilepsy.

5th Feb 2013

A study in Cornwall could help reduce the risk of Sudden Unexpected Death in Epilepsy (SUDEP). Researchers...

5th Feb 2013

A study is underway to look at what disrupts heart and lung activity during seizures that can prove lethal...

5th Feb 2013

Raising awareness of Sudden Unexpected Death in Epilepsy among coroners and pathologists has led to better...

28th Dec 2012

Schoolboy Jack Megson has attracted the attention of ex-health minister Paul Burstow after he called for the...

27th Dec 2012

A mother whose son died following two massive seizures a year ago was nominated for “fundraiser of the year”...

30th Nov 2012

Epilepsy Bereaved staged its biggest conference ever, thanks to the support of 100 researchers, families,...

30th Nov 2012

Doctors and nurses working with epilepsy heard about the many ways EB helps families bereaved by SUDEP.

29th Nov 2012

More than 15,000 copies of a book that brings together global expertise on SUDEP will have been distributed...

29th Nov 2012

UK charity Epilepsy Bereaved has been hailed as an international leader in the global campaign to eliminate...

1st Nov 2012

A community angered by the theft of an EB collection tin in memory of a 22-year-old teaching assistant have...

1st Oct 2012

Epilepsy Bereaved has welcomed the UK’s first national audit of epilepsy care for children and young people.

4th Apr 2012

Supporters left EB’s annual conference fired up to do everything they can to reach out to people with...

16th Jan 2012

Epilepsy Society and Epilepsy Bereaved have today announced a strategic alliance between the two charities.

10th Nov 2011

Birmingham, Selly Oak MP Stephen McCabe used an adjournment debate in the House of Commons to highlight the...

1st Nov 2011

An important study published in the electronic version of Lancet Neurology, concludes that treatment with...

8th Aug 2011

The Scottish Fatal Accident Inquiry determination that SUDEP should be discussed unless it would cause...

7th Jul 2011

The heartbreaking story of how a healthy 10-year-old boy died in his sleep from SUDEP was used by a...

5th Jun 2011

The Epilepsy World Congress 2011 held in Rome attracted some 4,000 delegates and the topic of the...

5th May 2011

The Royal College of Paediatrics and Child Health is investigating serious morbidity and mortality in...