SUDEP Action's COVID-19 research projects shared as posters at the 2021 ILAE British Branch Conference
Throughout the pandemic, SUDEP Action and leading researchers at the University of Oxford and Newcastle University have been carrying out research to understand the impact the pandemic has and continues to have on people with epilepsy, their carers, clinicians and on those bereaved by epilepsy/SUDEP.
So far 2 research papers have been published on our findings, one focusing on the impact on people with epilepsy, the other on the impact on epilepsy services and healthcareworkers (with more research papers on the way).
The valuable information shared with us by those who took part also meant we could highlight our concerns with MPs and Policy Makers through our Lives Cut Short report.
The research has also be shared in presentations to:
- The All Party Parliamentary Group for Epilepsy and a number of of MPs interested in supporting SUDEP Action in its work
- Attendees at the 2020 American Epilepsy Society (AES) meeting
Most recently, findings from these two studies have been shared with attendees at the International League Against Epilepsy (ILAE) British Branch's annual conference - where leading UK clinicians and researchers come together to share the latest research. You can see the two posters we shared below:
Experiences of the bereaved during the pandemic
Risk escalation & mitigation during the pandemic
For more information on these two research projects, please click here.