SUDEP Action

Making every epilepsy death count
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September 2017 blog

A place to thank, appreciate and celebrate our fundraisers.

Our fundraisers are top notch. Take a read to find out what they got up to in September.

Charlotte Riley ran the Swindon Half Marathon in memory of her sister, Hailey Wilson. Her brilliant personal online blog details her experience of fundraising.  Here is a short snippet: “It all feels very surreal, although up until a few days ago, my kneecaps were shouting at me – YES IT DEFINITELY WAS YOU, YOU DID JUST RUN A HALF MARATHON!! Let’s just say they felt as though someone had hit them with a sledge-hammer, but they’re all good now thank fully.”

You can read the full blog via the following link:  What’s it like to run a half marathon? 

Jean Coyle-Larner along with friends and family raised funds in memory of Nick Stevens. Jean commented, ”We had our annual Nikfest celebration and it was the best event ever, it was absolutely lovely.”

Nic May took to the skies in memory of her sister, Samantha May. Nic told us: “I chose a WingWalk to raise much needed funds and awareness for SUDEP Action. I did this on 24th September, it was an amazing day, sunny, clear skies and warm.  My sister Samantha died 10 years ago and I wanted to do something in her memory to raise funds and awareness.  I have been blown away by the support given and wish to thank everyone that got involved including all staff and foster carers at Xcel 2000 Fostercare, Sittingbourne where I work.”

The Bell in Bredhurst raised funds in memory of TJ Sinden. Organiser Sam Sinden, TJ’s mother, informed us: "On 10th September we held a fundraising day at The Bell in Bredhurst, in memory of our son, TJ, who passed away from SUDEP on 6th September 2016, his 26th birthday. TJ was one of the chefs at The Bell and the staff were amazing helping to arrange the event. On the day we had live music, a hog roast, bouncy castle, cake and sweet stall, face painting, a raffle, lucky dip and a balloon release. It was a great day and everyone thoroughly enjoyed themselves."

Molly McClelland and her fantastic co-workers raised funds in their workplace. Molly informed us: “On 29th September we held a SUDEP day at HRG UK Liverpool. With a bake-off, a raffle and 3 months of dress down we raised some money in memory of my uncle Stephen McClelland who sadly passed away of SUDEP. The day was a success and I was overwhelmed with the turn-out, thank you to all who helped make this happen.”

Thank you and well done to all our September 2017 fundraisers. We really appreciate your help in our aim to prevent epilepsy deaths and support those bereaved. 

If you took part in a fundraising event for SUDEP Action in September and would like to be included in this blog please email [email protected].

The SUDEP Action Team


Most of our fundraisers are fundraising on behalf of a family member or friend who has died. As we celebrate the success of our fundraisers, we keep in our thoughts their loved one who is no longer with us.