SUDEP Action

Making every epilepsy death count
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December 2016 Blog

A place to thank, appreciate and celebrate our fundraisers.

Some brilliant festive fundraising took place in December. This is what some of our amazing supporters got up to.

A super team of SUDEP Action runners took part in the London Victoria Park Santa Run. Runner Fadi Haddadin informed us:  “It was a lovely day and all four of us had a great time. It was my best personal 5K at 20 min 41 sec, a minute faster than my last 5K.  We also got a big shout for SUDEP Action over the mic as I crossed the finish line.” Pictured are runners Fadi, Lucy, Jacob and Leila.  

Brilliant bowling shirts raise funds and awareness in memory of Nathan Slade. Toni Slade, Nathan’s mother informed us: “We attended AMF Bowl in Scunthorpe to see some of the guys who had purchased a shirt to wear when bowling. Danny Richardson organised to have shirts made for bowlers to purchase to help support SUDEP Action by incorporating the SUDEP logo whilst remembering Nathan who bowled for many years across the leagues. £5 from the sale of each shirt sale has been donated to SUDEP. Everyone clubbed in to help buy a shirt for Nathan's twin sister, Taryn, who was so touched by the thought of being included in receiving such a gift from all who knew him.”

Proceeds from Christmas Carols were donated in memory of Kate Odd. Tricia Odd, Kate’s mother, commented: “Although it is nearly 20 years ago that our daughter died from SUDEP, Christmas is always a difficult time.   On Christmas Eve it is customary for a group of us to sing carols around our small village, accompanied by as many instruments as our talented singers can muster.  This is always a happy occasion with everyone in party mood and at many houses we are given champagne, mince pies or mulled wine as well as extremely generous donations towards causes close to our hearts. SUDEP Action will always be the charity we support.”

Tammy Panye held a Snowflake disco in memory of her partner Pete Masters. Tammy informed us: “We held a Christmas disco and who doesn't love a disco. We had a photo booth, sweet ladder , buffet and of course a raffle, and we put lots of Christmassy hats and glasses on all the tables so everyone could wear during the evening and get in the Christmas spirit. The night was to raise money and awareness for SUDEP Action and for those who knew Pete to remember him . I made purple glitter jars with snowflakes and white berries with a candle in to glow during the evening, and small snowflake decorations with SUDEP Action on them to attach to the raffle prizes so people had a keepsake decoration of the night but a reminder of SUDEP Action, and within the balloons we was able to put the SUDEP Action balloons inside them to go on all the tables.”

Caron Robinson was busy raising much needed funds and awareness over the festive season, in loving memory of her daughter Nikey Robinson as well as many other lost loved ones. Caron organised a memorial tree to be placed in her local church, decorated with names and pictures of many lost to epilepsy. She also held an eight hour collection at her local Tesco. Both raised much needed awareness. 

Just under 80 people crowded into Blytburgh Village Hall on Saturday 21st January to take part in the 3rd annual Owen Williams Memorial Quiz. Contestants answered questions on such topics as Sport, Connections, Beat the Intro and Odds and Ends.  In the interval they enjoyed a choice of curry or chilli, cooked by a friend of Owen’s Mum, Ro Williams. In a closely fought contest, the quiz was won by a team from Owen’s old school, Stowmarket High who have entered every year. There was only 4 points between the top 3 teams. Ro Williams said: “It was great to see so many people enjoying the evening and raising money for a cause which is very close to my heart.  I know Owen would have loved the evening and this is our way of ensuring that he will not be forgotten.” Thank you to everyone who attended the 3rd annual Owen Williams Memorial Quiz. Special thanks to Ro Williams. Well done to the wining quiz team!

Thank you and well done to all our festive fundraisers for thinking of SUDEP Action in December.

If you took part in an event in December and would like to be included in this blog please email [email protected]

The SUDEP Action Team 

Most of our fundraisers are fundraising on behalf of a family member or friend who has died.  As we celebrate the success of our fundraisers, we keep in our thoughts their loved one who is no longer with us.