SUDEP Action

Making every epilepsy death count
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After A Death Condolences - Support Available

After a death of someone either with epilepsy or who was experiencing seizures

It is important that the bereaved are signposted to specialist support early, and do not have to distinguish between different organisations or explain what has happened over and over again. Generic bereavement support cannot provide what families need in the case of epilepsy-related deaths.

Instead what is needed is expert advocacy and casework integrated with specialist bereavement support which is what SUDEP Action aim to provide. The timing of this support is extremely important and should be provided as soon after the death as possible (whether or not the death has been confirmed as epilepsy-related or SUDEP). 

Download a template letter here to send to any patient who has died who has a record of epilepsy or who was experiencing seizures:

File Template letter - After a death condolences & signposting

SUDEP Action is the only UK charity specialised in supporting and involving people bereaved by epilepsy, including SUDEP (sudden unexpected death in epilepsy).

Our tailored bereavement service helps and empowers people after someone with epilepsy has died, through specialist bereavement support, counselling and casework, including support through investigations and inquests. The support we provide is open-ended and can be accessed at any time after the death. 

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Further information you may find useful:

If you would like to receive updates about supporting families after an epilepsy/SUDEP death, and would like the latest information, free resources & research from SUDEP Action (via our quarterly clinician enews), please leave your details below: