How our work champions SUDEP and epilepsy deaths

Epilepsy Bereaved was founded in 1993 as a self-help group. It became a charity in 1995 because of an overwhelming lack of information and action to reduce epilepsy-related deaths. Epilepsy Bereaved was the first organisation in the UK and internationally to champion the SUDEP cause and is the leading organisation worldwide on this issue.

Our aims are:

	To support families affected by SUDEP and other epilepsy deaths
	To raise awareness of SUDEP and other epilepsy deaths through education and by influencing decision makers
	To promote research into SUDEP and other epilepsy deaths

Epilepsy Bereaved is based in the UK and works with other epilepsy organisations as part of the Joint Epilepsy Council of the UK and Ireland. We are uniquely placed to address the issue of prevention of deaths and information and support for bereaved relatives.

Epilepsy Bereaved is advised by a panel of epilepsy experts and specialist pathologists. We therefore have access to information and advice. We aim to assist families understand the investigation and cause of death as well as advising on information, prevention of SUDEP and research.

CLICK HERE for our Family History