SUDEP - Understanding Risk

If someone is diagnosed with heart disease or cancer it is not unusual for us to worry that they may die from the condition. In fact, although these conditions are life-threatening we know that this general risk does not really tell us much at all about an individual’s risk as many forms of cancer and heart disease are treatable.

On the other hand if someone is diagnosed with a long-term condition like asthma or diabetes we tend not to worry all the time that the condition will be fatal, although every year there are deaths from these conditions. This is because asthma and diabetes respond well to good management of the condition and indeed the risk of dying from asthma has dropped significantly since medical management of the condition e.g. having an annual review has been introduced in GP surgeries.

The public is less well informed about the risks from epilepsy. It is not uncommon for people to be told that seizures in themselves cannot be fatal. In fact, an epileptic seizure like an asthma attack carries a background risk that may be life-threatening. Like any other condition the knowledge of a background risk does not tell us very much at all about an individual’s risk. Like other conditions, however, with a good understanding of a person’s epilepsy and good management of the condition, risks from seizures can be eliminated or minimised.

Our leaflet Be Safe-Reduce Risk is an introduction to how someone with a diagnosis of epilepsy can better understand their background risk, how to manage it and put it into perspective. The next step is to discuss this with health professionals who help you manage your epilepsy.

Click Here to see side 1 of the "Be safe – Reduce risk" leaflet.

Click Here to see side 2 of the "Be safe – Reduce risk" leaflet.

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