Jeffrey Buchhalter MD, PhD, Chair, USA SUDEP Coalition;
American Epilepsy Society, Citizens United for Research in Epilepsy (CURE), Epilepsy Foundation, National Institute of Neurological Disorders and Stroke (NINDS)
“The SUDEP Coalition would like to congratulate Jane Hanna, Executive Director of Epilepsy Bereaved on her recent receipt of an OBE award. Epilepsy Bereaved has led the now world-wide effort to bring public awareness to the existence of sudden death associated with epilepsy, possible preventative measures and research into its causes. We are all indebted to the past and ongoing work of Ms. Hanna and Epilepsy Bereaved”.
Denise Chapman Epilepsy Australia;
“SUDEP awareness in Australia owes much to the groundbreaking work of Epilepsy Bereaved. While we may be half a world apart, Epilepsy Bereaved supported us to understand the problem and the need for community awareness of SUDEP and its known risk factors and from this a working partnership developed. In 2005 Epilepsy Australia and Epilepsy Bereaved published the book ‘SUDEP – A Global Conversation’ leading to interest and action across the world. Here in Australia, the ongoing work of Epilepsy Bereaved continues to inspire our own efforts in addressing these tragic deaths among the Australian community.”
Professor Tomson, Department of Clinical Neuroscience, Karolinska Institute, Stockholm, Sweden;
“In October 1996, I took part in the international workshop on Sudden Death in Epilepsy in London. The meeting had a major impact on the direction of my research and is only one example of how Epilepsy Bereaved has provided leadership to the rest of the world on how to respond to these tragic deaths”
Elizabeth J. Donner, MD, FRCPC Co-founder, SUDEP Aware, Canada;
Mike Glynn, President of the International Bureau for Epilepsy (IBE);
“Brainwave has found the work of Epilepsy Bereaved a wonderful model for its own efforts in seeking to increase awareness of SUDEP and other epilepsy deaths, to help survivor families and to advocate strongly for measures to prevent unnecessary epilepsy deaths and to promote research to discover the cause of SUDEP. The incredible achievements of Epilepsy Bereaved from such humble beginnings and in such a short space of time are profoundly inspiring’
Page Pennell, MD, Chair, Epilepsy Foundation Professional Advisory Board, USA
“Jane Hanna and Epilepsy Bereaved have helped bring the issue of SUDEP to an international stage. Jane’s unparalleled work over the past two decades has shown her commitment to raising awareness of SUDEP and increasing research activity with the aim of preventing death from SUDEP. Congratulations, Jane, on being honored with an OBE.”
