Epilepsy Bereaved became the first voluntary
sector organisation to lead a national clinical audit. Key questions
about SUDEP previously asked but thought too sensitive were
raised. The Audit's main finding was the significant potential
for avoidance of premature deaths (about 40% of deaths). The
Audit also found that the investigation of epilepsy-related
deaths was poor, and this hampered progress in learning from
the deaths.
The Epilepsy Deaths Audit was welcomed in
2002 by all four chief medical officers in the UK as a `landmark
report’, and was summarised in the Lancet as a `wake-up
call’ to epilepsy management around the world.
| National Sentinel Clinical Audit of Epilepsy-Related Death
- Report 2002 |
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CLICK
HERE for the report |
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| National Sentinel Clinical Audit of Epilepsy-Related Death
- Report 2002 - Summary |
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CLICK
HERE for the summary |
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| Investigation of Deaths in Epilepsy - Audit Tools |
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CLICK
HERE for the audit tools |
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| Lancet Commentary |
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CLICK
HERE for the commentary |
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| Statement from the Chief Medical Officer to Epilepsy Bereaved
- for the launch of National Sentinel Audit into Epilepsy-Related
Death (SUDEP) |
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CLICK
HERE for the statement |
| Specific guidance on SUDEP included in the NICE epilepsy
guidelines 2004 |
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CLICK
HERE for more information |
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| A Government Action Plan on Epilepsy in England |
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CLICK
HERE for more information |
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| The Royal College of Pathologists has launched a new guideline
for the investigation of epilepsy deaths. |
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CLICK
HERE for this guideline |
