SUDEP - Information on Epilepsy

Epilepsy is not a single condition but rather a group of diverse neurological disorders that have in common the characteristic of repeated, usually spontaneous seizures that originate in the brain.

Epilepsy is defined as a tendency to have recurrent 'fits' referred to as seizures that originate in the brain. A seizure is the outward symptom of abnormal or excessive brain activity. There are many different causes of abnormal brain activity. It's like an 'electrical storm' in your brain.

Seizures vary widely in different individuals and usually relate to exactly where in the brain the seizure begins. During some seizures only an isolated part of the brain is affected and a person may lose awareness and have automatic movements such as fiddling with clothes, mumbling, chewing or wandering about. In other seizures the whole brain will be affected and the individual may suddenly lose consciousness, become rigid and fall. The individual’s muscles then relax and tighten rhythmically.

Some epilepsies can be categorised as specific syndromes. A complex of signs and symptoms is used to define a unique epilepsy syndrome. Syndromes will have different causes in different individuals, yet share characteristics such as the age of seizure onset, seizure type, intellectual development and findings from examinations or tests.

Most people have only a vague idea of what it means to have epilepsy and do not appreciate that there are many different types of epilepsy. If you have been diagnosed with epilepsy it is important to understand your type of seizure and epilepsy syndrome if this is known, and how it may affect you and what choices you have to manage it.

See Epilepsy and the Young Adult (PDF) and a wider range of other self-help information from epilepsy organisations listed under other sources of help.

 

 

 


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