HOW YOU CAN GET ACTIVE WITH EPILEPSY BEREAVED

There are many different ways of helping us to raise awareness of SUDEP and epilepsy deaths and to inform and support people who are bereaved.

Commemoration & Fundraising

Any donation would help us to secure the work of the charity. Please email us if you are interested in making a donation. Ongoing fundraising activities include grant applications and individual commemoration events in memory of a loved one. There are many ways to help us raise funds and raise awareness in your community. Encourage your workplace to support Epilepsy Bereaved as their Charity of the Year. Attend a fundraising event or have one of your own.

Family Support

This service provides information and support to bereaved families using trained volunteers.

Raising Awareness of SUDEP and other epilepsy related deaths

The Big Lottery are funding us to support people with experience of SUDEP to raise awareness. You can help us to raise awareness in many different ways including:

	Managing an information stand at a conference
	Speaking of your experiences at a conference or support group
	Speaking of your experiences to the press
	Asking questions at an event or conference
	Represent the charity in projects to improve services for people with epilepsy and people bereaved through epilepsy

Raising Awareness amongst Coroners & Pathologists

Ongoing education regarding the needs of bereaved families, the work of Epilepsy Bereaved and the importance of accurate investigations and recording of epilepsy deaths.

Raising Awareness amongst GPs and Health Care Professionals

Ongoing education of the risks of SUDEP and other epilepsy related deaths is needed. We can provide you with a pack to help you contact your GP and with a pack specially for your GP which encourages them to take up new national incentives to improve epilepsy services within their practice.

All Party Parliamentary Group on Epilepsy (APPGE)

We continue to support and promote this group. Activists from Wales and Scotland are active within the National Assembly for Wales and the Scottish Parliament, raising awareness of epilepsy related deaths on our behalf.