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Information on our SUDEP and Bereavement
support service.
Bereavement is a highly individual
experience. It is important to remember that there is no right
or wrong way to grieve. People grieve in different ways. There
is no set pattern to grief.
We offer :
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Someone to listen |
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A confidential service |
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A volunteer who has personal experience of
an epilepsy death |
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Information about epilepsy deaths and SUDEP |
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Meetings with other families bereaved through
epilepsy |
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A regular magazine |
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Contact can made by email or within the UK
by phone. Initial contact is with the family support manager
who will listen and assisting you with what you may want from
the charity.
If you are outside the UK we can provide
email contact and can provide you with hard copy publications
not available on this website.
The value of a family support volunteer
"You and my volunteer have been
my inspiration and I cannot thank you enough for all your contact
and help" A young wife who had lost her partner
"I realise that you know exactly
how we feel" A family on the loss of their daughter
"I felt you were a friend, not a
stranger in another town or city" A father who contacted
Family Support after the death of his son
It may help to know that you are not alone.
Family Support volunteers are people within the charity who
have experience of bereavement through epilepsy themselves,
give their time willingly and freely and have been trained in
this role. The volunteer will try to help by listening and assisting
you with what you may want from the charity. Contact can be
made by email or by phone and after the initial contact, future
contacts are agreed between you and the volunteer.
Mailing list
We can put you on our regular mailing list
so that you will receive information of our Epilepsy Bereaved
meetings.
Meetings in the UK
The charity has regular meetings in the UK
for people bereaved through epilepsy. These provide an opportunity
for everyone, including new members, to meet and talk to each
other in a friendly and relaxed atmosphere. Meetings are also
an opportunity to be brought up to date with relevant information
and to take part, if wished, in discussions about the charity.
As we are a very small, national charity we are only able to
organise national or regional meetings and do not have the resources
at this point for regular local meetings.
CLICK
HERE to go to see the list of meetings in our events
diary.
Publications
"We Painted the Sky" is a book
of poetry written by bereaved relatives and a memorial service
tape of readings and songs is also available from the charity.
Photo Gallery
CLICK
HERE to see our Family Support Photo Gallery.
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