Below are some useful links to other epilepsy organisations in the UK, along with information on death and bereavement and Epilepsy in general.
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Death and bereavement
UK Government information on death and bereavement
Coroners Reform & Charter for the Bereaved
Royal College of Pathologist Guidelines.
Epilepsy Bereaved is a member of the Joint Epilepsy Council UK and the Neurological Alliance of England
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Useful Bereavement organisations
Cruse Youth Helpline – RD4U is a website developed by Cruse Bereavement Care’s Youth Involvement Project which aims to support young people after the death of someone close to them.
Winston’s Wish – helps bereaved children and young people rebuild their lives after a family death.
The Way Foundation – supporting men and women who are bereaved up to the age of 50.
British Association of Counselling & Psychotherapy (BACP) – where to find a therapist in your local area.
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Epilepsy organisations for people with epilepsy
National Centre for Young People with Epilepsy
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Epilepsy Guidelines
Scotland - SIGN (Scottish Intercollegiate Guidelines Network).
Wales - Service Directive for Epilepsy
National Institute for Clinical Excellence
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Professional Organisations
International League Against Epilepsy (ILAE)
Epilepsy Specialist Nurses Association (ESNA)
The International Bureau for Epilepsy (IBE)
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International
Canada & North America; sudepaware.org
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