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Useful links

Below are some useful links to other epilepsy organisations in the UK, along with information on death and bereavement and Epilepsy in general.

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Death and bereavement

UK Government information on death and bereavement

Coroners Reform & Charter for the Bereaved

Cororners Reform Act

Charter for the Bereaved

Royal College of Pathologist Guidelines.

Epilepsy Bereaved is a member of the Joint Epilepsy Council UK and the Neurological Alliance of England

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Useful Bereavement organisations

The Samaritans

Cruse Bereavement Care

Cruse Youth Helpline – RD4U is a website developed by Cruse Bereavement Care’s Youth Involvement Project which aims to support young people after the death of someone close to them.

Compassionate Friends

Winston’s Wish – helps bereaved children and young people rebuild their lives after a family death.

The Way Foundation – supporting men and women who are bereaved up to the age of 50.

British Association of Counselling & Psychotherapy (BACP) – where to find a therapist in your local area.

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Epilepsy organisations for people with epilepsy

Epilepsy Wales

Brainwave Ireland

Epilepsy Scotland

Epilepsy Action

National Society for Epilepsy

National Centre for Young People with Epilepsy

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Epilepsy Guidelines

Scotland -  SIGN (Scottish Intercollegiate Guidelines Network).

Wales - Service Directive for Epilepsy

National Institute for Clinical Excellence

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Professional Organisations

International League Against Epilepsy (ILAE)

Epilepsy Specialist Nurses Association (ESNA)

The International Bureau for Epilepsy (IBE)

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International

Epilepsy Australia

USA Epilepsy Foundation

Canada & North America;  sudepaware.org

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