In the UK there are 3 deaths in young people each day. Each year there are estimated to be at least 500 SUDEP deaths (Sudden Unexpected Deaths in Epilepsy); 400 SADs deaths (Sudden Arrhythmic Death Syndrome) and 300 SIDs deaths (Sudden Infact Death Syndrome).

On 18th May 2006 the Royal College of Pathologists, in partnership with the charity Epilepsy Bereaved, hosted the first UK conference addressing the issues surrounding sudden unexpected deaths in young people. The conference brought together for the first time leading organisations concerned with supporting the bereaved and preventing sudden deaths. Speakers included leading experts and representatives from CRY (Cardiac Risk in the Young) and the Foundation for the Study of Infant Deaths.

150 Pathologists from around the UK participated in this event which aimed to provide up to date information on good practice in the investigation of sudden unexplained deaths, with a particular focus on Sudden Unexpected Death in Epilepsy (SUDEP), Sudden Adult Death Syndrome (SADs) and Sudden Infant Death Syndrome (SIDs).

Research into SUDEP, SADs and SIDs has identified ways in which a significant number of these deaths can be avoided, but it is vital that deaths are properly investigated and certified and that prevention measures are taken.

Medical experts and bereaved relatives discussed new research, the impact of unexpected death on families and the need for action to ensure that more lives are saved. The conference highlighted the need for improved quality and standardization of the investigation of sudden deaths in the young and the need for further research to explore the relationship between SUDEP, SADs and SIDs.

For further information: www.sudep.org; www.c-r-y.org.uk; www.sids.org.uk